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Pulmonary Resources
American Partnership for Eosinophilic Disorders
APFED is a 501c3 nonprofit organization founded in December 2001 by a group of mothers of young children living with eosinophil-associated diseases. It is a patient advocacy group dedicated to improving the lives of those living with eosinophilic disorders.
https://apfed.org/
Little People of America
Little People of America, Inc., is a national nonprofit organization that provides support and information to people of short stature and their families.
List of Skeletal Dysplasia Clinics
https://www.lpaonline.org/regional-skeletal-dysplasia-clinics
Children's Interstitial Lung Disease Foundation
The chILD Foundation is a 501(c)(3) non-profit organization whose mission is to provide compassionate support, education, and hope to children and families affected by these life-altering diseases as well as to accelerate research to find effective treatments and cures for all forms of Children’s Interstitial Lung Disease (chILD).
Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
Pulmonary Hypertension Association (PHA)
PHA is a 501(c)(3) nonprofit organization with a mission to extend and improve the lives of those affected by PH.
National Organization of Rare Disorders (NORD)
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.